Episode 6 The Light At The End Of The Lyme Tunnel with Jillian Augey

Lyme Disease is an epidemic that is spreading across North America.  Unfortunately, it is hard to diagnose, and hard to treat.  Dr. Risk is speaking with a Lyme patient, Jillian Augey, to discuss the difficulties in getting a diagnosis, and treatment.  Jillian is involved in her community with Lyme Light Society and is dedicated to bringing awareness to this disease. 

Topics Covered In This Episode:

  • Can you tell me how this all started for you?
  • How did this affect you growing up with an unknown illness?  Did you feel you were a little different?
  • Did you feel you had to work at things a little differently than other people? 
  • What symptoms did you experience at first?
  • Did the illness change over time?
  • Was there a time when you realized that something was wrong and you decided to look into it more?
  • What was your doctor’s reaction to the myriad of symptoms that you were experiencing?
  • Was there a time that you felt hopeless?
  • What was the diagnosis in the end?
  • What exactly is Lyme Disease?
  • How did you feel when you were diagnosed?
  • How were you tested for Lyme?
  • What do you tell people who are symptomatic and test negative?
  • Why did you feel you had to go to the USA for treatment?
  • A lot of people look back and look for what we’re told is the “tell tale bull’s eye rash”, did you have this at any point? 
  • Do you remember your specific tick bite?
  • What was your family doctor’s reaction to the diagnosis?
  • What did you do next after diagnosis?
  •  There is a lot of people who have been tested for Lyme and it comes back negative, what would you tell those people?
  • How exactly do the tests work when testing for Lyme?
  • For you, you had Lyme for a long time.  We know that Lyme can affect the immune system, how did this show up for you and affect you?
  • Since you were tested several times for Lyme, how do you feel about the tests?  What needs to change to help people to be able to acknowledge their own illnesses?
  • What was your first choice for treatment?
  • What happened as you went through treatment?
  • Aside from herxing, what other challenges did you have through treatment?
  • What other complications did you and your doctor have to face in treatment? Was there anything else you had to treat aside from Lyme and associated diseases?
  • How long was your treatment? We are often told Lyme only takes a few weeks to treat. 
  • One thing people don’t always talk about is how expensive this treatment can get.  How did this affect you? 
  • What made you change the track from pharmaceuticals to a more natural route?
  • Through your association Lyme Light you have contact with different people going through treatment, what have you observed to be the best direction? Is there one “right” direction?
  • It is really common for people to want to “hurry up” and go faster.  After what you’ve been through, what do you think about this?
  • How are you feeling now?
  •  How did Lyme Light get started?
  • What does Lyme Light do for Lyme awareness?
  • How common is Lyme in your area?
  • What are common patterns that you see in those that are finally diagnosed with Lyme (ie MS, fatigue, etc)?
  • What challenges do you feel are needed to change what is going on for those suffering with Lyme?
  • I want to talk more about Lyme awareness.  I know that when people are finally diagnosed with Lyme Disease they often don’t recall a tick bite, which makes it harder to find the cause of their symptoms.  In fact Only 20-30% of those infected ever recall a tick bite.
  • What do you recommend to people to avoid infection?
  • What are the known modes of infection?
  • What is someone’s first step if they are bitten?  How do they remove the tick?
  • What do they do with the tick after they remove it?
  • What are signs that someone can look out for if they are infected?
  • What’s the next step after they are bitten, what do you recommend?