Episode 8 Caregiver Challenges with Shelagh and Doug Winkler

An unspoken challenge in illness is the stress it has on families and those who are caregivers. We are speaking with Doug and Shelagh Winkler, who have struggled with a family illness. They will tell us the struggles they faced. Anna Mann is with the Alberta Caregivers Association and she will help us define this roll, and learn what we can do if we are in this situation.

Topics Covered In This Episode:

  • What your life was like before Doug got sick?
  • How active were you? 
  • What was involved with working on the farm?  Physical work?  Mental work?  What sort of help did you have?
  • Were your kids involved in sports?  How were you involved with that?
  • When did the illness start?
  • How did it start?
  • When did you know something was wrong?
  • What did doctors say?
  • When were you diagnosed?
  • What was your treatment like?
  • How did it make you feel?
  • What happened while Shelagh was at work?
  • How did this affect your kids?
  • How did this affect the rest of your family?
  • What was the response from your parents?
  • What was the response from others?
  • What happened to your relationship? What did that look like?
  • How did you find support and what did that look like?
  • Did you feel isolated at any point?  How do you feel that could have changed if people were more informed?
  • Who was there to help you the most?
  • What happened the longer you were sick?
  • What is happening as you are getting better?
  • What do you feel you did need from others that you didn’t get?
  • Do you think there could have been anything you would have done differently if you had known how long the illness would have been?
  • Would advice would you give to others in the same situation?
  • What was it like to wait between appointments?
  • What did being sick mean?  Could you work? 
  • What did a typical day look like when you were at your worst? 
  • How did you go about your morning routines?
  • Can you tell me a bit about The Alberta Caregivers Association?
  • We just spoke to Doug and Shelagh, who are husband and wife, but there must be other dynamics as caregivers.  Who are do we usually see as caregivers?
  • How does someone go about to recognize themselves as a caregiver?
  • What emotions do caregivers generally go through?
  • What do you usually recommend to someone who is a caregiver?
  • How can people get a hold of your organization if they need to?