Human Rights Violations of Patients with Lyme Disease
“The many egregious practices related to the 2006 IDSA Lyme guidelines have perpetrated fourteen human rights violations.”
–Jenna Luché- Thayer
Patients with Lyme Disease have been vilified by the medical establishment for years. There is an overwhelming body of evidence on the existence of acute, chronic, systemic and persistent Lyme disease, and yet patients are still denied health care, testing and treatment. This is a global epidemic spreading across all countries affected by Lyme disease (so far recorded 85 countries). It is time for change.
Human rights violations of patients and their human rights defenders:
In 2018 The World Health Organization (WHO) listened to patients and advocates and set ICD codes (International Statistical Classification of Diseases and Related Health Problems) for Lyme Disease. What does this mean for patients? Even if the country the patient resides in does not yet have the codes listed below in their medical system, this information can be given to the treating doctor to help them recognize that Lyme disease is real and can be affecting the person in front of them. The WHO is in place to protect everyone, and this recognition of Lyme disease means every Lyme patient legally has a right to treatment, testing and security as a patient.
The codes listed below can be taken to doctors to help patients in their cause and educate doctors where their governing body may not be set up yet to do so.
1C1G Lyme borreliosis
1C1G.0 Early cutaneous Lyme borreliosis
1C1G.1 Disseminated Lyme borreliosis
1C1G.10 Lyme Neuroborreliosis
1C1G.11 Lyme carditis
1C1G.12 Ophthalmic Lyme borreliosis
1C1G.13 Lyme arthritis
1C1G.14 Late Cutaneous Lyme borreliosis
1C1G.1Y other specified disseminated Lyme borreliosis
1C1G.1Z Disseminated Lyme borreliosis, unspecified
1C1G.2 Congenital Lyme borreliosis
1C1GY Other Specified Lyme borreliosis
6D85.Y Dementia due to other specified diseases classified elsewhere; dementia due to Lyme disease
9C20.1 Infectious panuveitis; Infectious panuveitis in Lyme
9B66.1 Infectious intermediate Chorioditis; infectious intermediate uveitis in Lyme disease
8A45.0Y Other specified white matter disorders due to infections; Central Nervous System demyelination due to Lyme borreliosis